Driving Jessica's Taxi: Happy 18th birthday Jessica

Monday, September 07, 2009

Happy 18th birthday Jessica

When I was pregnant with my first child Jessica I imagined she would be beautiful and intelligent. She is both. I never imagined she would be silent. But when my baby was 18 months old she lost her voice to autism. She has never recovered and this a great loss. Tomorrow Jess will turn 18 years old. I could fix my thoughts on what I had hoped for her (independence). She will be 18 years old be she still wears a diaper, can not dress herself, can not walk across a street alone. All of this is sad. Unless God intervenes (and I believe God can step in and change everything) Jessica will never be independent. But I do not fix my thoughts on what she can not do. I choose to thank God for all that she is. Jessica is a sweet, sensitive, loving, intelligent, funny young women. She was so brave to get on an airplane and fly to Thailand. She was also brave to swim in the ocean (something she has always feared). She can read people well. She always gives me a hug when I am sad and makes me laugh. Although many of her dreams are trapped with in a body that does not do what it should, she still dreams. And because I’m her mom and I love her I also dream for her. Jessica has a cold, so we will probably not do much tomorrow. On Saturday I hope to take her shopping because she likes that. I’m sorry she can not speak but you do not need words to love. There are no words to say how much I love her. Happy 18th Birthday Jessica, you are a gift to me and your family. May all your dreams come true!

1 comment:

The Ordinary Horse said...: Oh I'm tearing up for you and for Jessica. I try every day to focus on what my Eliza can do and not on what she can't. The silence is unbearable some days and a God-send on others. You know all of this though. I'm sending you the biggest of mom-hugs that I can. I feel your pain of the haunting memories of all that you thought you'd experience with first-time motherhood. It is a loss and grief beyond words when your child is held captive by something we can't protect them from or change for them. You have given Jessica your unconditional love and devotion and she is beautiful, smart and happy because of that. You are an incredible mother. Happy birthday Jessica from a mother who hopes to be half of the mother to her non-verbal daughter as your mother is to you. High 5 on turning 18!!!; 7:52 PM

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pot holes and pits

There are pot holes and there are pits. To this point I had never really fallen into a pit. I had no idea how to handle what was happening, no idea at all. When you run over a pot hole, it shakes you up a little. Some times the pot hole is so large, it can even cause some car damage. That would require a day or so in the shop. But a pit is different. You fall into a dark hole, and when you get up to inspect for damage, you often fall off the ledge even further down. If fact one of the scariest parts about falling into a pit is being in the dark, and never knowing when and if you have really hit the bottom. When Jessica was 18 months old she had 5 immunization shots in one day. I remember asking the nurse if it was a problem that Jessica was sick, and taking antibiotics for an ear infection. I should have used my best instincts and said "no" not today. But they were the medical professionals. I was just a first time mom. What could go wrong? But with in 4 days things went terribly wrong. It has be wrong for 19 years now. Jessica lost her voice. I thought we would just spend some time in the shop, get the car repaired and be back on our way. Instead of getting on the road, I have had the challenge of learning to live my life inside this hole...and I know now I may never be allowed to recover from that fall.