Saturday, September 27, 2008
China with stem cells
Mark came to China in June 2007, at six years old. His family hoped the treatments being tested would give him some relief from his autism. For more information go to www.stemcellschina.com
Has anyone ever tried stem cell treatment?
I'm looking for information about cord blood or adult stem cell treatment for Autism. Does anyone know anything about this? I think it can be done in Germany? I want to consider it for Jessica. It may not cure her (she is 17) but maybe it could help?
Thursday, September 11, 2008
Monday, September 08, 2008
17 things about Jessica
1. Her favorite movie is Aladdin. She watched it tonight and you could hear her scream with laughter. She also loves to watch Toy Story 2 in French. I think she loves to hear the name "Woody" with a French accent.
2. Her favorite food would be Chicken McNuggets with out any sauce.
3. She has been to 13 Countries, some of them many times.
4. She has been to Disneyland an absence number of times. Her favorite ride is it’s a Small World, although she also loved Splash Mountain when I took her to Disneyland at the end of July.
5. She loves to take drives in the car, especially at Christmas time.
6. She was baptized in the Jordon River in Israel. This was one of the best days of my life. Nicole was also baptized. The peace of God was all over her.
7. She reads people very well. She can not talk but she can write very colorful discretions of people.
8. She understands at least English and German. Every time she can, she listens to French, and Korean. For some reason, she just loves Korean?
9. I give Jessica the credit for many things, including my heart of compassion.
10. She is not very neat. She prefers her chaos.
11. She can walk a long way. It is hard to get her started, but she can walk for hours.
12. She never had sugar until she was a year old. She does not really like sugar now, but loves fresh fruit and salad. She is actually pretty healthy.
13. She can say fish, kitty, and sheep, and horse. She has never said Papa or Daddy. She has said Mama about 6 times in her life. Mostly she is non verbal.
14. She loves to look at fashion magazines. She also loves to wear new cloths, and feel pretty. She is much more of a girly girl then Nicole or Sarah.
15 She will sometimes give sad people a hug. She will grab the hands of strangers and say, “Oh”. I’ve seen her bring people to tears with her simple heart of love.
16. She loves God. She loves to discuss Theology with her teachers...she writes on the computer.
17. When I say "give me a kiss" she lights up and gives me a big loving smack!
Happy 17Th birthday my beautiful girl!!!
2. Her favorite food would be Chicken McNuggets with out any sauce.
3. She has been to 13 Countries, some of them many times.
4. She has been to Disneyland an absence number of times. Her favorite ride is it’s a Small World, although she also loved Splash Mountain when I took her to Disneyland at the end of July.
5. She loves to take drives in the car, especially at Christmas time.
6. She was baptized in the Jordon River in Israel. This was one of the best days of my life. Nicole was also baptized. The peace of God was all over her.
7. She reads people very well. She can not talk but she can write very colorful discretions of people.
8. She understands at least English and German. Every time she can, she listens to French, and Korean. For some reason, she just loves Korean?
9. I give Jessica the credit for many things, including my heart of compassion.
10. She is not very neat. She prefers her chaos.
11. She can walk a long way. It is hard to get her started, but she can walk for hours.
12. She never had sugar until she was a year old. She does not really like sugar now, but loves fresh fruit and salad. She is actually pretty healthy.
13. She can say fish, kitty, and sheep, and horse. She has never said Papa or Daddy. She has said Mama about 6 times in her life. Mostly she is non verbal.
14. She loves to look at fashion magazines. She also loves to wear new cloths, and feel pretty. She is much more of a girly girl then Nicole or Sarah.
15 She will sometimes give sad people a hug. She will grab the hands of strangers and say, “Oh”. I’ve seen her bring people to tears with her simple heart of love.
16. She loves God. She loves to discuss Theology with her teachers...she writes on the computer.
17. When I say "give me a kiss" she lights up and gives me a big loving smack!
Happy 17Th birthday my beautiful girl!!!
Jessica turns 17
Yesterday morning we were sitting around the breakfast table. Thomas said something, I don't even recall what. I said, "sometimes we just need to understand that our time is not always God's time", "we need to trust God with what we want". As I said these words I began to cry. Thomas was confused. Why was I crying. Nicole and Juergen both understood. It was the final day of Jessica's 16Th year. I had a dream years ago that Jess would be healthy and normal when she was 16. I never knew if I could trust this dream as something from God, or just a mothers "wishful thinking". Well, she turned 17 years old today. She is still autistic. So how do I feel? Sort of disappointed. But I still love God, and I still love Jessica. I guess there are some questions that will remain unanswered until it is God's time. I still pray for that healing to come. I am very grateful today for this beautiful, funny, smart 17 year old that has always been a gift to us. I hope that some day I will see her healed but I love her deeply. She is a treasure partly hidden. I could be really sad about what I don't have or I can be glad about what I do have. What I do have is a sweet and loyal friend. Happy Birthday to my wonderful Jessica!!! I love you more then I could ever express. You are my compassionate teacher. I guard you but you lead me.
This is Jessica from birth until age 14
Sunday, September 07, 2008
Report: Fever Improves Autism Symptoms
When Jessica had a very bad case of the chicken pox’s she did show an improvement in her over all ability. Now they say that there is a connection between fever and brain function.
John McCain on Autism
John McCain is very concerned about the rising incidence of autism among America's children and has continually supported research into its causes and treatment. He has heard countless stories about families' hardships obtaining a diagnosis for their children's autism and accessing quality medical treatment. He believes that federal research efforts should support broad approaches to understanding the factors that may play a role in the incidence of autism, including factors in our environment, for both prevention and treatment purposes.
John McCain was proud to lend his support to the Combating Autism Act of 2006, which he cosponsored, and worked to ensure its enactment. This law is helping to increase public awareness and screening of autism spectrum disorder, promote the use of evidence-based interventions, and create autism Centers of Excellence for Autism Spectrum Disorder Research and Epidemiology. John McCain understands that despite the federal and scientific research efforts to date, the exact causes of autism are not yet known and greater research is needed to understand this disorder. That is why in November 2007, he joined with Senator Lieberman in requesting the leadership of the Senate Health, Education, Labor and Pensions Committee, which has jurisdiction over federal research into autism, to hold a hearing on federal research efforts regarding factors affecting incidence and treatment in order to help determine where research efforts can best be directed. As President, John McCain will work to advance federal research into autism, promote early screening, and identify better treatment options, while providing support for children with autism so that they may reach their full potential.
John McCain was proud to lend his support to the Combating Autism Act of 2006, which he cosponsored, and worked to ensure its enactment. This law is helping to increase public awareness and screening of autism spectrum disorder, promote the use of evidence-based interventions, and create autism Centers of Excellence for Autism Spectrum Disorder Research and Epidemiology. John McCain understands that despite the federal and scientific research efforts to date, the exact causes of autism are not yet known and greater research is needed to understand this disorder. That is why in November 2007, he joined with Senator Lieberman in requesting the leadership of the Senate Health, Education, Labor and Pensions Committee, which has jurisdiction over federal research into autism, to hold a hearing on federal research efforts regarding factors affecting incidence and treatment in order to help determine where research efforts can best be directed. As President, John McCain will work to advance federal research into autism, promote early screening, and identify better treatment options, while providing support for children with autism so that they may reach their full potential.
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